HHT Center of Excellence

The UCSF HHT Center of Excellence is Northern California's only facility specializing in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.

Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.

We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.

Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).

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Our Services

  • Patient education and management of HHT-associated symptoms and complications
  • The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
  • Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
  • Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations

Doctor referral may be required

Our locations

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    Decorative Caduceus

    Pulmonary Hypertension Association Registry

    PAH guideline-recommended diagnostics assessed include chest radiography, echocardiogram, ventilation-perfusion (V/Q) scan, pulmonary function tests, overnight oximetry, and right heart catheterization and identified as either "co...

    Recruiting

    Decorative Caduceus

    Prospective Assessment of Premature Ventricular Contractions Suppression in Cardiomyopathy(PAPS...

    Compare the overall improvement or change in LVEF between RFA and AAD groups.

    Recruiting

    Decorative Caduceus

    TReatment of Pulmonary Hypertension Group II Study

    Procedural related Adverse Events (complications) at up to 30 days post procedure including pulmonary artery perforation/dissection, acute thrombus formation in the pulmonary artery, pulmonary artery aneurysm, vascular stenosis, h...

    Recruiting

    Support services

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    Case Management and Social Work

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    Mindfulness-Based Stress Reduction Class

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    Spiritual Care Services

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    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your condition
    • List of your medications, including dosages, plus any you're allergic to
    • List of questions you may have
    • Device or paper for taking notes

    International Services

    If you live in another country and are coming to UCSF for medical
    treatment, our patient liaisons can help coordinate all aspects of your visit.

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    Interpreters

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    English, as well as for patients who are deaf or have trouble hearing.

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    Zion.

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    Related clinics

    Interventional Radiology Clinic

    505 Parnassus Ave., Room M-361
    San Francisco, CA 94143

    Neurointerventional Radiology

    505 Parnassus Ave., Third Floor, Room L-349
    San Francisco, CA 94143

    Our research initiatives

    • UCSF-Center-for-Cerebrovascular-Research-2x

      UCSF Center for Cerebrovascular Research

      The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.

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