HHT Center of Excellence
The UCSF HHT Center of Excellence is Northern California's only facility specializing in the comprehensive screening, diagnosis and treatment of hereditary hemorrhagic telangiectasia (HHT), a genetic disorder affecting the blood vessels. We have been designated a center of excellence by Cure HHT, the leading organization for HHT research, education and patient advocacy.
Because HHT can affect multiple parts of the body, our team includes experts in numerous fields. These include interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery and pulmonology.
We trace each patient's genetic history of HHT and work closely with referring doctors to develop a personalized treatment plan.
Our clinic is associated with the UCSF Center for Cerebrovascular Research (CCR), which focuses its studies on vascular malformations of the brain. The CCR has a special interest in HHT, one of the few inherited causes of brain arteriovenous malformations (abnormal arteries and veins tangled together).
- Patient education and management of HHT-associated symptoms and complications
- The most advanced screening and diagnostic tests for serious complications of HHT, such as arteriovenous malformations
- Minimally invasive approaches to treating HHT, offered at state-of-the art interventional and neurointerventional radiology facilities
- Care by the neurointerventional radiologists who pioneered many of the treatments for arteriovenous malformations
Doctor referral may be required
MD, MPHInterventional radiologist
Teresa De Marco
Andrew N. Goldberg
MD, MSCE, FACSOtolaryngologist
Steven D. Pletcher
MD, PhDMedical geneticist
Pulmonary Hypertension Association Registry
PAH guideline-recommended diagnostics assessed include chest radiography, echocardiogram, ventilation-perfusion (V/Q) scan, pulmonary function tests, overnight oximetry, and right heart catheterization and identified as either "co...
Prospective Assessment of Premature Ventricular Contractions Suppression in Cardiomyopathy(PAPS...
Compare the overall improvement or change in LVEF between RFA and AAD groups.
TReatment of Pulmonary Hypertension Group II Study
Procedural related Adverse Events (complications) at up to 30 days post procedure including pulmonary artery perforation/dissection, acute thrombus formation in the pulmonary artery, pulmonary artery aneurysm, vascular stenosis, h...
Case Management and Social Work
Connect with a team that can help you find resources, solve problems and advocate for you during treatment at UCSF.
Mindfulness-Based Stress Reduction Class
This eight-week UCSF class teaches mindfulness practices, such as meditation and body awareness, that can reduce stress and improve your overall health.
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Spiritual Care Services
Chaplains representing many faiths are available around the clock to provide support, comfort and counsel to patients, families and caregivers. Learn more.
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your condition
- List of your medications, including dosages, plus any you're allergic to
- List of questions you may have
- Device or paper for taking notes
If you live in another country and are coming to UCSF for medical
treatment, our patient liaisons can help coordinate all aspects of your visit.
UCSF offers language services at no charge for patients with limited
English, as well as for patients who are deaf or have trouble hearing.
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Interventional Radiology Clinic
505 Parnassus Ave., Room M-361
San Francisco, CA 94143
505 Parnassus Ave., Third Floor, Room L-349
San Francisco, CA 94143
Our research initiatives
UCSF Center for Cerebrovascular Research
The UCSF Center for Cerebrovascular Research studies many aspects of cerebrovascular disease, from genetics to treatment outcomes, with a focus on vascular malformations of the brain.